May you find the time to renew your strength, lay your sorrow down, and rest a while.
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Mask up, love one another, and stay alive for one more week.
I’m really tired of “unemployed” being used as an insult
In a capitalist world, it’s the ultimate insult. Those of us who can’t work are subhuman.
Right there with you, seems like I’ve been seeing it a lot recently in the form of “Job is a scary word for some people” or something along those lines
i mean honestly, god forbid someone find the idea of spending all their time on back breaking work for peanuts to make some asshole richer scary or whatever
i feel like that’s just rational tbh
It is
more rational to me to not want to spend the majority of your waking life working
My union is organising an event to convince the university to let fewer people in.
A child patient informed me that she sure didn’t have any organs, those are gross. I couldn’t think of a non Deleuze based response so I told her that skin was an organ, and she looked at me like I just murdered santa claus.
Someone on the street said that I “Look like someone with a bunch of diagnoses”.
I saw a young mother and her baby share a red bull on the bus
How are you guys doing?
I couldn’t think of a non Deleuze based response so
That one really made me giggle way too much. Sounds like your day(s) have been entertaining to say the least! I’m hanging in there, and you sound like you’re hanging in there too <3 hope you’re doing better
I’m okay, like I’m not spending as much time thinking about it and I have a pretty normal routine again so it’s cool. Good to hear you hanging on, this place would be significantly less fun without you.
Baby steps, but I’m glad to hear you’re making progress.
And thank you, I’m trying my best
I don’t get how anyone functions, I’m so stressed and anxious all the time and I’m pretty safe atm
I mean I know I have really severe anxiety and trauma but still
I honestly don’t know either. There’s so much hanging in the balance, both politically and personally, I find it hard to take a step back to try and catch a breath, let alone relax. It’s not easy, especially if your load is already as heavy as it is. I’m with you in spirit, sweetie
I haven’t been too active on here the past few days and might not be as active as usual still. I’m having trouble fighting off this UTI and I don’t feel well. I’m about to finish my second course of antibiotics and they’re not working. On top of this of course I’m managing alone with everything as my landlady is still away visiting her sick daughter. Her daughter has now developed blood clots in her arms on top of everything else and the treatment giving so far hasn’t worked. She might need to have them surgically removed. I’ve got a date for my next foot surgery too and they had a cancellation so it’s in less than a fortnight. So now I need to raise money for the bandage packs again, I still don’t have my backpay. Everything’s a bit much at the moment and I don’t know what they’ll do about this UTI as I can no longer take most antibiotics due to contra indications and allergies.
I hope you’re all doing OK though.
Hopefully the surgery goes well and you can get off those meds soon, it’s a lot to deal with all at once
thank you.
CW: alcohol, psychiatric medication
Again got angry out at my boyfriend because he refuses to follow my OCD routine, I know I am to blame and he shouldn’t have to follow my irrational and weird urges and yet when I’m angry I just can’t think rationally and I say worst thing and blame him for everything even though I am the source of all problems in our relationships, I love him so much and yet I yell at him so often; FUCK OCD.
Just venting sorry. I was diagnosed schizotypal disorder at 13, not taking any meds rn because they make me sleepy (that to put it mildly, in fact they make me to feel like a zombie I barely feel alive when taking them) and instead “”“medicating”“” with alcohol, the worst thing is, I live in a homophobic fascist country (
) and everything sucks so much goddamn it.No need for apologies here, just take care of yourself as best you can. Relationships are hard even before you add in the complexity of disability
I’m getting better at not being like that, but it’s a struggle to unlearn
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Mood, but honestly, I get it. I’m glad you’re making progress! It’s rough, but you’re getting there
Also I wanted to ask if you could add an image description to either your image or the post. <3
- Thanks. And sure I’ll add a description, thanks for reminding me.
Thank you too
A nurse has just prescribed me a new antibiotic for this UTI. There are only three that work on this germ, and two of them I’ve already had reactions to, so if this doesn’t work, what will happen?
And I got my foot surgery this morning. If this surgical wound gets infected like it did last time, I’m in trouble now I can hardly take any antibiotics. Also because they previously cancelled my foot surgery (to try and save money for the NHS) it has spread in the meantime so they weren’t able to do the whole thing. I’ll have to get more done on 19th may.
I’m so exhausted.
I wish I could do more than send you a hug. Hang in there, love
Thank you.
I’m really scared about the antibiotic situation, if I have an allergic reaction to these ones, what will I do?
I honestly don’t know. I’m hoping there’s no allergic reaction, but should there be, I hope there’s something to treat the reaction quickly. I’m rooting for you
I have been getting prescribed loratadine, an antihistamine, for the reactions, but it’s getting less effective and the allergic reactions are getting more frequent. The doctors don’t seem overly bothered about it though.
Sounds like it :( I’m keeping my fingers crossed for you sweetie. There’s gotta be a light at the end of the tunnel
Feeling sad. Just… sad
Probably due to being having to switch anxiety meds that weren’t working and were reacting badly with me
i always felt awful for a few weeks after switching my meds. hope you feel better soon
Switching meds can be hard to do, hope you’re doin better today
Well, they’ve let me down again. They did a dipstick test at the GP surgery on my last two urine samples and told me I don’t have a UTI, so just take the bladder calming meds. They’ve got the results back from the hospital lab now and I DO have a UTI. It’s tested positive for strep B. Absolutely useless turds. So I am actually walking around with an untreated UTI. The doctor left a prescription for nitroforantoin. But I’m allergic to that now. I tried to tell her at my last appointment but she was too busy to hear about my allergies. So now I have to wait to see if I can get a different one, but I’m allergic to so many I don’t know what will happen. She’s too busy to talk about it though.
I fought for a GP appointment today as I can’t take these bladder sachets any more. I actually got one. The GP told me I’ve ben referred to urology, so that’s something. However when I brought up the fact that I’m having allergic reactions to everything now she said in an irritated tone like it was a nuisance to have to deal with me, “I don’t have time to talk about your allergies now. I’ll talk to you on 5th May, that’s the soonest I can do.”
Apart from the fact I might die of anaphylactic shock in that time, how stupid is this? Talking about my bladder took barely two minutes. She couldn’t spare another minute to hear about my allergy symptoms and make a note to refer me? Instead in NHS logic it makes more sense to give me another appointment two weeks from now to talk about that. No wonder it’s so difficult to get an appointment. And GP appointments are supposed to be 10 minutes, she didn’t even give me my full allowed time. And a consultant from the hospital already wrote to her, telling her to get me allergy tested. But it seems like she’ll put up resistance.
It’s the same with the physiotherapist. In my appointment can I talk about my inflamed tendon and my plantar fasciitis? No. I can only talk about one and have to make a separate appointment to talk about another body part. Extra stupid considering they are both caused by the same issue, the fact my left side is weak after a stroke.
I love how the British medical system still manages to surprise me, like holy shit, your patient has 10 minutes with you, then give them the allotted 10 minutes.
Germany established the 10-min-per-appointment rule too a couple of years back, and while no doctor I’ve seen has rushed me out, they are already behaving in a similar manner. They don’t have time to see their patients, even though that is the main point of their profession. A lot of the docs I’ve seen have apologized for it, hung up info flyers that told patients “The government is making us do it like that, don’t blame us”, others are just so overworked they don’t even care anymore.
I wish there was a short and easy way to make all of your problems go away, so that you get competent and inclusive medical appointments with better treatment options, doctors who take you seriously, and universal health care where you don’t have to pay for each and every little thing that a hospital or doctor should provide you with. I know it’s a long shot, but I’m really sick of how you’re being treated by a system that is supposed to provide care to those in need.
Thank you.
As life becomes more automated there seems to be less space for human interaction. Instead of a doctor being a human who tried to help, now they are basically machines who stick to a schedule and try to get through as many patients as fast as possible.
I couldn’t agree more, that is the same type of development I’m experiencing here too. The solution is definitely to have more doctors, financing the study program so more people can be come doctors, and maybe, just maybe, that would already make all of them more patient. That alone might help with the as-fast-as-possible appointments. One can dream, at least
I’m raging today. I thought the medical industry couldn’t let me down any more than they have but they have managed to outdo themselves. People who read my posts may know that I’ve been having bladder issues for some time now. It flares up and down but basically it’s like having cystitis all the time. I can’t sleep at night, have to get up to wee constantly, and always feel like I need to go. I’m finally on the waiting list to see the urologist and have been prescribed several bladder calming meds, none of which have helped.
Well, I was at the GP today about my test results and I got chatting to a retired nurse who happened to be there and she told me that over-treatment with thyroxine (which I’ve been having for years to try and stop my cancer coming back) can have the side effect of an overactive bladder. The same issue I have been seeing doctors for for years, begging for help, is perhaps being caused by my damn cancer treatment and not a single doctor has ever even thought of this, maybe the ignorant twats don’t even know this is a side effect. God, I hate this life! These fuckers told me this treatment has no side effects and already it has given me a stroke, heart issues, multiple food intolerances, perhaps an overactive bladder and a whole lot more.
Oh Russia, please nuke the UK to oblivion, I am sick of this shit!
Got my urine test results today, they say there’s no sign of infection now, but my symptoms are as bad as ever. Of course couldn’t get to talk to a doctor, all the appointments had been taken already.
Last year, around summertime I think, I complained to my local MP about all the problems at the GP practice and just got a response today! Of course the response just fobbed me off, the GP surgery don’t give a fuck about any of it.
I can’t get a response to my mutual aid post for help with my surgery costs. I think I’ll wait until Monday morning and if I don’t have a response by then, cancel the appointment, that will give them two days to give it to someone else.
Well, life sucks, what’s new?
I am seeing a new doctor and a new practice on Monday! Hopefully they can help me with the chronic fatigue and stuff <:) heheh!
I also love my GF sooooo much! I lover her waaaahh!!!
Mmmm also just discovered I am hypermobile :0 ooooo
Also depression has been SO MUCH WORSE ALL OF THE SUDDEN it is a lot… is this a plot to get me fucked up on my finals?!?!
Also I want a mobility aid aaaa
I hope everything works out in your favor, comrade
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I gotta pass out now, please see the new mega here
