Welcome to the new mega, you lovely people. To another two weeks of making it through. Sometimes, when the help you need isn’t (made) available to you, remember there’s always someone here who can and will listen. You are not alone 
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As always, we ask that in order to participate in the weekly megathread, one self-identifies as some form of disabled, which is broadly defined in the community sidebar:
“Disability” is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.
Mask up, love one another, and stay alive for one more week.
I often feel like disabled people are denied agency, either we are shown to be 100% relying on others or our functioning in the world just makes things harder for others. When the world capitalism created is the reason disabled people can’t live on their own, it is capitalism that decided you have to travel 90+ minutes to do any work, it is capitalism that created the warming world which triggers so many heat sensitivities, we didn’t ask for it, this is what capitalism forces us to do.
The agency thing is absolutely true.
Unfortunately you are absolutely correct
The disability support may not be accessible to anyone who can’t walk up winding stairs, it may be located an hours drive from school, it may he staffed by a rotating cast that switches every 2 hours, but they have collaborative knitting projects and that’s kina neat. They’ve made a fourth of a scarf.
I am sure they do these things on purpose to make people give up trying to access the help.
They do let you have phone zoom meetings. What’s funny is that the last place was also inaccessible, so there might be something to the idea that its on purpose.
They just check the box of “Did we provide ‘accessible’ options?” without actually including anything accessible. Congrats on passing your test!
i am going to try to go out to the fair this weekend wish me luck. im going to go super early so its less crowded
Good luck.
Update us on how it goes
I haven’t been too active here lately as I haven’t been feeling great. I’m having awful migraine and bladder flare ups. My bladder is just out of control, I can’t sleep at night due to having to go to the toilet constantly. And I still haven’t heard a thing about getting a hospital appointment to deal with the issue. I’ve taken to wearing incontinence pads. Still recovering from my foot surgery and dealing with all of my usual issues too. I also think I have a mild touch of food poisoning but I don’t know what caused it.
And everywhere like the hospital have now switched to using chemical toilets. They absolutely stink and are worsening my migraines. I also had a physio appointment yesterday and I hoped to be discharged with a letter for my next benefit assessment. After all, it hasn’t worked at all and I am resigned to being permanently disabled. But the physio refused to write me a letter, saying “We DOn’T Do tHAt.” And said she doesn’t want to “give up” on me and tried to nag me into further physio treatments but I just can’t take any more and said no. I am just exhausted by endless hospital appointments, especially when nothing ever gets better.
i’m coming around to a current internal resolution on the “omg you people cant do anything” tweet and it’s kinda just this
my existence is a dialectic between the Mortified Spirit and the Path of Least Resistance. sometimes the Mortified Spirit tries to shock me into Berserker Mode and sometimes it allows me to do things I can find pride in getting myself to do but sometimes it starts Corrupting the Firmware if I overindulge it. sometimes the Path of Least Resistance is necessary recharge, but sometimes it can spiral into Soul-Degrading Bedrot and other thresholds of what I can only describe as Asmongoldian Behaviors (horrifying).
the former cannot be discarded because I want to do stuff and I like doing stuff and it would make me sad if I did not do stuff. the latter cannot be discarded because if I ignore my physiological needs and try to face-tank hormonal deficiencies the pokemon low health beeps start playing for the next month. I have come to the conclusion in my time living with it that I must bob and weave through the tension these poles create if I don’t want to either burn out or rot away.
the main reason that tweet legitimately sucks is because the person posting it didn’t have ADHD IIRC, anyways. One of those things where I can say that to myself but you can’t say that to me because it is really only acceptable as self-critique. It’s a dick move to mock people’s demons for a punch-down laugh.
Oh yeah I have to actively fight my bedrotting instinct, but I also don’t want the ones to talk about that to people who don’t understand my situation.
Passed a test, called my mom to brag, asked her “Know what just i did?”, and she immediately replied “Got yourself sent to the hospital?”
It’s only happened twice in a year.
Congratulations on the test.
Your mother has a vicious sense of humor (?)
I’m happy to hear you passed your test, congratulations!
My mom’s repertoire consists ironically of dad jokes and vicious sarcasm. This time she wasn’t joking though.
And thanks. yeah, check me out. Rocking an 90% correct rate on the test.
I can tell lol
Yipeeh! You did it!
I always need up crying when trying to engage with Health Communism…
I never got around to reading it. Could you elaborate?
It’s essentially a book about how sickness and disablity exist in relations to if you can labour for capital, while biological aspects exist, the effect on someone’s life is determined by how that one aspect interacts with wider socio-economic system.
Sounds like I need to read this.
Yes you do for sure, it’s almost a communist manifesto for the disabled and ‘dysgenic’ people
Health Communism
Adding this one to my reading list.
Thank you, comrade!
No problem comrade!
I get some time for myself for a few days, gonna practice my crochet and park my ass on the couch.
Hope you enjoy it.
Well I found out why my bladder is so out of control, it’s an actual UTI this time. I was ignoring the symptoms for days, letting it get worse, thinking it was just my usual bladder irritation.
Hope you feel a little better soon
Thanks. But the antibiotics aren’t working at all and they won’t give me any more until my urine test comes back.
i went to the fair and i was rly overwhelmed by the loudness so im tired, but i got to touch a pig’s nose so it was pretty good
Pigs are so heckin cute
Pig snout > Human noise. Also human noses. Most humans don’t want you touching their nose.
I finally got the new medication I was supposed to be taking a few days ago. I don’t know if I’m supposed to be feeling the effects yet or if it’s just power of suggestion, but I think I feel better now. At least, in the ways that I’m looking for. Fewer psychotic symptoms. On the downside, I have, like, no semblance of balance anymore, swaying when I walk, and heaven forbid I have to be on one foot for anything longer than a single step. My sleep schedule got fucked up. But honestly, I’m willing to deal with these things.
Glad you’re feeling at lest somewhat better. It sucks though that everything has side effects.
I hope everyone has a great week! You are loved more than you know.
I have lost a significant amount of my ability to function on my own in recent months and I worry about my ability to maintain independence. I need someone to help me work through the physical mess in my residence and through the administrative mess of various things. I need a meal service desperately. I have been eating reheatable meals for far too long, and it isn’t sustainable in terms of health or cost.
My ability to function at work is also fracturing due to the lack of support in other aspects of my life, and I think I may be close to being fired due to a few recent mistakes and meltdowns. I don’t know what I would do if I were to lose my employment, as I have never been able to find jobs on my own, but I have aged out of the system that helps one find a job.
There’s a baby loose on campus. Its crawling around checking out all the stuff, everyone gets greeted with a loud “Da!” And if they fail to respond they get another one.
Mom is hanging back letting the baby do its thing. It is adorable.
God I’d love to be a mom.
Uh… Sorry my uh… Parental instincts kicked in there. (Cough).
I’d like to think I got them from my biological mom! Apparently when I was being adopted she flipped out at my adoptive “”““mom””“” (I hate you Michelle) and threatened to kill her.
Not exactly something you want to be saying at someone if you still want visitation custody, but by god that sounds exactly like the sort of thing I’d do.
Extreme irritation✅ Questionable impulsive decisions✅ Something you look back on and go “Yeah I shouldn’t of done that”✅
Add in the emotional bond the subconscious purposefully creates between mother and child, and yeah you uh… You get that.
Fortunately as I’m growing older I’m getting better with managing my anger.
But I do think I also got my parental drive from my mom too.
I know I keep harping back on it, but I really wish my mom wasn’t dead and that I could interact with her. (Sober of course.)
Just… See myself in her and vice versa.
Those are all valid thoughts concerning motherhood. And i think it would be great if you could have met your biological mother.
I don’t really know how to give useful feedback or talk about this deep subject meaningfully. So all I can say is that babies are the best.
Second
charges dragon breath
