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AddLemmus

@ AddLemmus @lemmy.ml

Posts
20
Comments
257
Joined
1 yr. ago

  • Treatment for ADHD seems engineered to be difficult specifically for those with ADHD to obtain.

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  • There is a private clinic that is more streamlined: GAM Medical. You have to pay out of pocked, but honestly, even without a high paying job, it's easier to get the money than it is to jump through all those hoops. My insurance (GKV) costs me € 1100 per month, but I still pay a few 100 out of pocket for meeting their psychiatrist once and paying for my meds.

    It's not perfect, though. They too seem to miss the point that it's hard for us to keep pushing and prodding for the next step. I wish it were just a series of automatic appointments. It's slow, you'll have to keep pushing, mailing, calling them for the next and the next and the next step, but in like 6 months, there's a good chance you got your diagnosis and your treatment, be it therapy, meds or both.

    I got pretty frustrated with them, but unlike every other option I tried, they delivered - eventually.

    You could, in theory, also use them just to get diagnosed. Then, it would be easier to find a psychiatrist for the prescription, because at that point, that's a lot of money for very little effort for a doctor. Could even have insurance pay. Extra work, though.

  • Every time I watch Doctor K. Today's episode: Avoidant Personality Disorder

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  • Which ones do you find bad?

  • Every time I watch Doctor K. Today's episode: Avoidant Personality Disorder

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  • I got a call from my mom yesterday...

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  • I'll certainly not fuck up this specific thing as a parent, but can't help but wonder if I fuck up things with equal or higher impact.

    I try to keep an open mind, watch out for wrong decisions and judgements, and hope that it doesn't come to that - or that, with such diligence, my apology will be accepted when the day comes.

  • My doc fixed crashes and binge eating after stims

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  • Nice! Yes, immediately ready food is important for our condition. It gives us the freedom to prepare something nice occasionally because we want to, not because we are already shaking and in a crash.

    Understanding that I need to rest proportionally to what I do on stims, and ignore how I feel (in this particular case), has been such a breakthrough. Now I'm benefitting from meds until bedtime, not just 4 hours. I really thought the meds wore off, and that's how it felt ... but I was just dashing around with half the calories.

  • My doc fixed crashes and binge eating after stims

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  • Yes, definitely try a few. Most are disgusting, but you only need to find one or two that work for you. "This is Food", Jimmy Joy, Soylent, ...

    There are also bars and other forms, but I found that the liquids go down easiest when not hungry at all. Only two good bars: Vanilla and Almond & Fig from Jimmy Joy.

    Your local supermarket probably has some of those.

  • People with ADHD: What are the things about it that people don't get?

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  • It's very different for everybody, but here are things that would apply to SOME:

    • She might reject "must do now" orders. Instead of saying "Start your homework now and do it until it is finished", change both the start and duration to something manageable. "Hey, you are home! Just relax for 20 minutes, and 5 minutes before dinner starts, get everything for your homework ready on your desk." Starting the actual homework is far less overwhelming, then. And instead of "... until it's done", make a deal like: "You only have to do 12 minutes of the task, but with a challenge: 12 minutes of maximum efficiency and performance!". When it is about cleaning the room, also provide a clear unit of work, such as a time constraint (with stopwatch, never wing it!), or toys only, dirty laundry only, a well-defined section only.
    • She might already be the willpower equivalent of a body builder, because she has to do with force of will what other people have done for them, be it the frontal lobe breaking down a task, or handing out dopamine rewards that she does not get. When she starts a task such as homework, she has to face the whole tree of little steps and what could go wrong: Find the backpack, alternative plan for when the math book is not in it, the notebook has half a page left, so she will have to stop in the middle to find the new one (where is it?), ...
    • When she is on a productive obsession, such as reading, an instrument, an area of knowledge, let it run its course undisturbed. There might be phases in which everything feels like too much, so these phases are invaluable. Much of her skillset might come from intense obsessions rather than continuous habits.
    • Focus on finding a starting point to an overwhelming task, such as point 1: Get the homework ready and in place, then do something else. It might trigger a thing where she WANTS to start immediately, and otherwise, the start will be so much easier.
    • Allow her to skip homework when it is too much and write a note for the teacher. E. g. got back home sick, doctor visit on the afternoon, exhausted and unable to finish homework, but did a start. When necessary.

  • People with ADHD: What are the things about it that people don't get?

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  • **It's more like things about neurotypicals: **

    • They don't have an iron will; actually, their willpower is often much weaker. But their frontal lobe rewards even little things such as clearing the dishwasher right when it is done with little dopamine shots, which they crave and and seek out, almost involuntarily.
    • When they face a task, they don't break it down into little steps with superior conscious intellect. They see the goal, e. g. a tidy kitchen, and their frontal lobe breaks it down and tells them what the next tiny step is to get a dopamine fix. They are not overwhelmed with all the little things that need to be done and what could go wrong, e. g. that wiping a surface could fail when it turns out that the cleaner is in the bathroom or there is still dishes on it.

  • How do you guys feel about the Pomodoro Technique?

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  • Love it, nothing would get done without it. A few tricks and changes I applied over the decades:

    • When you are in a hard spot, or habit building, or a child, 25 minutes can be too much. How about 10 minutes. The thought that after those 10 minutes I'll be more skilled at X than ever before IN MY LIFE can be quite motivating.
    • Similarly, how about just ONE session? Seems ridiculous, but what I got done with that over 10 years is nothing short of amazing.
    • Be super-serious about it. You can get water upfront, you can go to the toilet, but not once the session started. It's essentially Squid Game, and only the player who crammed the most into their head survives. If you have to pee, you pee in your pants. You don't get water. When you do break the rules, e. g. because there is literally a fire (react to fire only if survival chance is < 90 %), the session is marked as failed and you are done for the day. It's DEFINITELY better than half-assing two sessions even a little bit, like reacting to a phone buzz or door bell or getting water.
    • Audio-Log. Your task is serious (see above), it's like reviving a frozen Neanderthal. Example: "It's Jan 1 2025 3 p.m. Ready to start the 25 minute countdown and point of no return ... now. Ok, max performance needed. Item of highest priority: Find position in book and recap what we learned yesterday with a 42 second timebox. Note: After 42 seconds, acquisition of new information directly will become more effective than preparing for it. Timebox counting down now on second timer. ..." I just hope nobody ever finds my audio logs, or I'm in the nuthouse for good.

    One of the things I love about it is that it gives a unit of measure. It's no longer like: I want to be a programmer, so I have to do this for a couple of years with no clear end. It's a unit of progress that can go on a todo-list and be checked off.

    So yes, for learning new things, it's still my way to go. Usually with 1 unit per day only, 45 minutes, sometimes 25. Most other tasks offer a different breakdown. E. g. cleaning up - can't just do it. But it is less threatening with checkable tasks like: 1. put all garbage in a bag. 2. put all non-foods in box 1. 3. ...

  • How do you avoid getting trapped by hyperfokusing on the wrong thing when working from home.

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  • I work from home, and I have to use lots of methods. Then it works.

    Just two examples:

    • I always have to work strictly with todo-lists. When it's not on a list, it's not getting done. On the other hand, putting it on the list, rather than doing it, feels like 55 % of the mental effort.
    • Implementation intention: My brain takes offence to "must do now" orders. Instead, when I catch myself on a youtube/scrolling binge, I set a trigger (e. g. time, end of video) at which I do one item from the list. If there is no list, I write the list. That way, I get to continue enjoying for a bit longer, but now guilt-free (!), and can continue guilt-free after doing that one thing.

  • Can your meds feel stronger / more effective when treating anemia?

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  • I think the big picture is huge and not entirely known. One angle: A cause of ADHD is a bad gut biome. This may also affect the bioavailability of micronutrients, thus leading the deficiencies. Compensating for that by taking more, with supplements, could help with additional symptoms.

    Long before I had a diagnosis or meds, I had some good runs, few years even, and even back then, I saw the link to certain foods. When fixing multiple problems at the same time, the effect was enormous.

    Some caffeine, but well distributed, as a poor man's stimulant, combined with drinking a lot, very specific foods ... I think it was a mix of "medication", hydration, gut biome (low sugar, probiotic foods) and fixing multiple deficiencies at the same time. When that extra energy results in more physical activity, additional amplification happens.

    So yes, I believe that multi-vector attacks on your health problems work in synergy, better than the sum of their parts.

    As for iron specifically, a lot can be done wrong. What I recall: Best in the morning before first coffee / tee and some time in-between, with Vitamin C. Personally, I can't stomach it, so I got to ignore that rule and just take it with the biggest meal.

  • Can't think of what to do, hence scrolling

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  • What works best for me is to focus on what I CAN fully control. Taking a hike and having fun is overwhelming, because who knows how I will feel. On the other hand, making the plan to eat my lunch sandwich at the lake (hiking destination) is totally doable.

    When there is no list and the weekend starts, I work with implementation intention: Totally do keep scrolling until time X, then make the todo-list, then back to scrolling. Next thing would be to do ONE item from the list at time Y.

    It's similar with the "plan" to sleep at midnight. Better: By midnight, I'll be setup perfectly so that I could sleep, the rest is not my job: Pyjamas, teeth brushed, room temperature, bed ready. Sometimes that leads to sleep, sometimes it doesn't, but better than when I don't even give it a chance, or when I feel pressure to fall asleep.

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    Is it normal to feel this way?

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  • Oh, he might be me. 1 also applies to 2: Don't see "dentist" as this complex task that is about figuring out what to do, getting the money, getting it done.

    Focus on one thing: Get a quick cheap appointment for a first assessment. Typically 10 - 20 minutes, I think, unless he does same day x-ray.

    OP would feel like a million bucks when he walks out and has a first idea how how extensive the work will be. When I was in that situation, I was sure it would be horrific, like many pulled teeth, expensive dentures. In reality, there were just lots of discolourations and 5 cavities, which is not great, but so much better than I thought. And it's likely that my case is already near worst-case, because with anything more, there'd be enormous pain and infections.

    If dentist anxiety is involved, first step is to find a dentist who specialises in that. Like, when you first come, he'd have a talk in the office, not the dentist chair, and only if you feel like it, he'd have a look based on your limits (e. g. no instruments in mouth, not on the dentist chair, etc.).

  • CBD oil cured my anxiety and so I lost important part of my ADHD motivation 🤦‍♀️

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  • Yes, the anxiety, guilt, pressure that gets it done eventually in a panic frenzy, when the adrenaline kicks in. It was not a good life, though.

    For my son, I don't want that, I want to be understanding that he might have a dopamine/noradrenaline imbalance that would make it disproportionately cruel to force him to clean his room right now. (He's getting checked, of course, but in the meantime got to take my best guess.)

    But the result is that he does not get even priority tasks done, sometimes.

    I'm sure I can find a different way for him, starting with getting him checked. Some methods also work for him. E. g.: Don't have to do it right now, but when it's 5 p.m. / the video is done / whatever, set a stopwatch and do 10 minutes of cleaning. Or, since he can't find where to start, do one thing: All garbage into a bag, or all toys into the box, or all dirty clothes into the wash.

    Don't get your anxiety back, find a different way for yourself.

  • CBD oil cured my anxiety and so I lost important part of my ADHD motivation 🤦‍♀️

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  • A lot can be learnt, as I did for decades. Always obsessed to try all the various methods, and enough of them work for me, to a degree.

    But I think when it has gone to the point, there is more to it. In my case, it was the ADHD. My brain did not follow through with the plan to start doing the task, always had to push through some inner "pain", and that is not pleasant. For others, it might be depression. So I had a lot of pain just to do the highest priorities barely good enough, while a normal brain would do it all without the effort, and kick in sweet dopamine rewards after each task.

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    Is it normal to feel this way?

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  • Most important is to not get hung up on some image of what you "should" do. See if you are capable of improving yourself for 15 minutes per day, exact, with a stopwatch.

    A first 15 minute session might just be a best effort of assembling study material.

    Then see how it goes: Can you learn something new during that time? If so, you can do it, and it's just a matter of time.

    What motivates me is that after those 15 minutes I'll be smarter than I have ever been before. You can also do 25 minutes if you feel it.

    I have done great at times, long ago, to study something new. Most times it didn't work out, though. One of my most toxic thoughts is: I should basically know this and it shouldn't take long, I'll just skim through the material. No, real progress happens when I set aside a brief moment to learn just this one little basic thing, but for real, with taking notes, practising if applicable. Turn that into a daily habit, and it's really powerful.

  • With Elvanse, I'm Joe Biden on speed

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  • Yes, crashing pretty hard sometimes. But it's a great blessing, even just 3 good hours per day, or 30 good days in a year can change a life.

    Have you been taking it for long? My worry is that this kind of effect that we are talking about diminishes greatly after a while, because it is kind of similar to how coffee, opioid painkillers etc. improve this and may not be based on big changes in the prefrontal cortex. 2 months for me so far, slowly going up from 12 to 24 mg as it diminishes.

    I also wonder about another thing: The fact that a low dose works well on me & gives me such a high, and the relatively low duration could mean that I just metabolise it faster, like on the very lower end of the half-life range.

  • Im on meds! [celebration/rant mix]

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  • I know I’m making mistakes with my son. I just hope that I’m getting more right than I get wrong.

    Exactly. I won't be making THAT mistake, but certainly others that my parents didn't. Who knows how it all adds up.

  • Im on meds! [celebration/rant mix]

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  • I even had a referral from my GP to get checked for ADHD, after asking him specifically, but still no appointments. I would have taken one in a year, but not even that.

    Another 15 months later, I found a private practice that specialises in it. They are running it pretty smart, like a business: Psychology graduates without therapist training do the time intensive work of testing and talking, eventually write an expert assessment as a psychologist. Then a licensed therapist writes the official diagnosis after reading that and talking for 15 minutes. If needed, a psychiatrist finally just signs the prescription.

    Bit frustrating to pay for all of that out of pocket, while insurance premiums are over EUR 900 per month.

    It's going a lot better so far for my elementary school child. Called the best looking clinic, which has psychiatrists and therapists, and got an appointment in 3 months. Didn't bother trying for something sooner, as 3 months wasted seem like nothing compared to my over 30 years, lol.