I would counter that the medical term is descriptive. Tell anyone with medical/medicine-related education someone has frontotemporal dementia and they know what is going on with the patient and what bodypart is affected. We can simplify with just "dementia" or a simpler term but you loose the specific meaning. Just like cancer is a two syllable simple word but a proper diagnosis includes way more information and has a more difficult term related. Equally, while the layman may prefer teflon and benadryl, the chemical/scientific name tells a trained person exactly what they are dealing with without having to look anything up, and does not suffer from different names across languages/borders. You cannot force simpler names as they will not be used in the medical/scientific community, so only if a disease is common enough to enter most peoples vocabulary will they come up with simpler terms or remember the term easily.
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But who does the patient need to communicate it to other than health professionals? Other people should be satisfied with a phrase like "dementia that causes me to behave different and/or have difficulty speaking" otherwise they are just going to have to look up the disease anyway.
FTD is a rare disease (meaning less than 65/100000 people get it in their lifetime) and there are thousands of rare diseases. Who do you propose should come up with simple names for all of these, teach these to all medical professionals and make sure all info online gets both the descriptive and simple name attached?? There are enough issues with terminology in the medical world as is, trust me.