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Jarlsburg

@ Jarlsburg @lemmy.world

Posts
1
Comments
56
Joined
2 yr. ago

  • Dad?

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  • I remember getting a legendary bat that did more damage the more drugs you were in withdrawal from and I renamed it "step dad".

  • What Social Games do you know that You and your friends play when you hang out?

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  • The Mafia/Werewolf social deduction type games can be played without any equipment if someone knows the rules well enough. Alternatively you can use the free companion app that is meant for the One Night Werewolf version guides you through it.

  • For the dudes here... What "girl" song you secretly love?

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  • Just listened to it and god she is amazing. Great recommendation!

  • For the dudes here... What "girl" song you secretly love?

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  • If you want to hear a surf rock instrumental cover that is actually phenomenal check out The Surfrajettes. Also amazing name.

  • For the dudes here... What "girl" song you secretly love?

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  • Google Chrome’s plan to limit ad blocking extensions kicks off next week

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  • hear ye

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    Permanently Deleted

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  • I got access to a really nice VR system through work and binged through Half Life Alyx. I was in a room that was large enough to walk around in, but for larger moves you use the controller to teleport a short distance. Also you can gravity attract items within a few yards with your gloves.

    After playing the first time I went to cook dinner and got embarrassingly frustrated when I tried to summon a spoon with a hand gesture.

  • Cassette Rules

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  • Highly recommend Cassette Beasts. It's a monster battler but you can freely swap and collect moves and the level of your monsters are based on your character level and not the level you obtained it. Plus all the moves have affixes like in Diablo that significantly change their use or potency.

    The sum of all that means you are always trying out new monsters and move sets, some of which are entirely broken. Great game.

  • What's the most expensive thing you've come to own that you've never gotten to fully use?

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  • Depending on the complexity of the part either Fusion 360, Tinkercad, or even just 3d Builder. I usually can find something close already existing and just modify that.

  • What's the most expensive thing you've come to own that you've never gotten to fully use?

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  • As someone who has been in the 3d printing space for awhile, I am amazed at how cheap and featured the entry level printers are. For ~$150 you can get a printer with auto bed leveling and a magnetic bed. At $15/lb of filament, you only need a few projects to pay for itself.

    For example, I printed the housing for a USB hub for a friend which is a clone for a ridiculously expensive one that fits Lovesac couches and he paid me $50. It cost ~$2 of filament and ended up printing a few more for others. That alone paid for the cost of the printer.

    For anyone who is thinking about it, now is a great time to enter the hobby.

  • Two newborn twins need a one-dose treatment that would save their lives: Zolgensma, a $2.1M drug. Insurance (also the mother's employer) cut coverage of the drug the day after they were born.

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  • I commented this elsewhere, but to answer your question,

    Zolgemsma is a modified version of adeno associated virus and has to be grown under specific conditions. It costs $500k-$1m per production. It's also a one time injection that functionally cures the person of the disease. There are a couple other options but for comparison, the other therapeutic is Spinraza which is an intermittent intrathecal infusion which is $805,000 for the first year of therapy and $380,000 per year thereafter for the rest of your life.

    SMA type I also is 100% fatal by year 2-3 and the baby dies without being able to even lift their head. It's a terrible prognosis.

    To be clear, I think we should bear the actual costs of research, development, and manufacture as a society and not profiteer off the sick, but there are some contributory reasons for the price.

  • Two newborn twins need a one-dose treatment that would save their lives: Zolgensma, a $2.1M drug. Insurance (also the mother's employer) cut coverage of the drug the day after they were born.

    Jump

  • Zolgemsma is a modified version of adeno associated virus and has to be grown under specific conditions. It costs $500k-$1m per production.. It's also a one time injection that functionally cures the person of the disease. There are a couple other options but for comparison, the other therapeutic is Spinraza which is an intermittent intrathecal infusion which is $805,000 for the first year of therapy and $380,000 per year thereafter for the rest of your life.

    To be clear, I think we should bear the actual costs of research, development, and manufacture as a society and not profiteer off the sick, but there are some contributory reasons for the price.

  • Two newborn twins need a one-dose treatment that would save their lives: Zolgensma, a $2.1M drug. Insurance (also the mother's employer) cut coverage of the drug the day after they were born.

    Jump

  • Two newborn twins need a one-dose treatment that would save their lives: Zolgensma, a $2.1M drug. Insurance (also the mother's employer) cut coverage of the drug the day after they were born.

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  • No one has given you an actual reply just assuming that the manufacturing costs for the drug are low. Zolgemsma is a modified version of adeno associated virus and has to be grown under specific conditions. It costs $500k-$1m per production.

  • Who do you consider a Great Author of the last 50 years or so (first well-known work after 1970)? I'd like to get a feel for who's who in modern literature. Any language/culture. Fiction only.

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  • I would say Robin Hobb. She writes easy to read, character driven fantasy novels that gracefully deal with a gamut of difficult topics (e.g., orphanism, otherness, sexual violence, mortality, etc.). The books really helped me build empathy for people and concepts that were far afield of my own experience.