In my dreams, you lay your sorrow on the table, and the air between us is soft and we have time.
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“Disability” is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.
Mask up, love one another, and stay alive for one more week.
Everyone supports “mental health” until they actually get called on to do it. I lived with nominally supportive housemates in college who would say “mental health is important! Believe in yourself!” Then when I started falling apart in my final year they got grossed out. They didn’t want anything to do with me. Why invite the depressed person to anything? They’re just gonna end up miserable. Talking about depression is gross and yucky, eww, uncomfortable, go to therapy, that’s your fault. So they just ended up excluding me from everything they did because it was easier for them.
cw suicide
It took a suicide attempt for them to even ask me if I was doing okay, after a year of my being vocally and visibly depressed.
It sucks finding out that good people can be bad friends. Yes, it would have been uncomfortable and difficult for them to help me. It would have taken some work. But they turned out to be the kind of friends who only like you when you’re fun and smiling.
Obviously my depression made things harder for them. It made things harder for everyone. That’s why I needed their help, and they didn’t give it to me
for real. i guess it’s the liberal thing about pretending to care about an issue so you look good? idk. also if you dont recover fast enough they get mad at you, lmao
The bootstrap mentality is omnipresent. You’re on the ground, managed once to ask for help, and if you don’t get up immediately, they leave you there.
And even if they don’t think you’re supposed to pull yourself up, they have so much learned helplessness with regards to actually helping that they watch on without doing anything. It’s frustrating to no end
Yep. I had to quit working and drop out of my studies when I became too ill to continue and people were weirdly angry and judgmental about it. I got comments like “So when are you going back to school? Why don’t you sign up to restart this coming term? When are you going back to work? You’re not back working yet?” And I’m like "What? I’m having cancer treatment, I’m so unwell I keep falling asleep in the middle of the day, I can’t concentrate, I have no energy and I’m having terrible side effects like heart issues and all kinds of other crap, I have non-stop medical appointments and fuckers are complaining that I’m not doing anything right now? As if fighting cancer is just not doing anything.
And the comments for being on benefits. Endless comments about how I’m getting “free money,” and “You don’t do anything to earn that, you don’t deserve it. Lucky you, some of us have to work for our money.”
dealing with benefits shit has been way more work than my previous bullshit job lmao, ppl r so stupid and annoying
Absolutely. Working a full time job was easier and less stressful than this.
I really think that almost everyone is like this. It was the same for me when I got cancer. At first people were shocked and sympathetic but as time wore on and my condition worsened, everyone abandoned me.
I actually hate being alive, being trapped in a physical body that’s falling apart and literally rotten, painful, infested with infection, doesn’t work, requires drugs to stay just barely alive, requires endless maintenance not to mention food, all of which takes time, effort and money. And for what? It’s not like these issues are going to be solved, all that can be done is just try to keep on top of them as much as possible. You could probably be prosecuted for animal cruelty if you kept a pet alive in this condition, but a human must be forced to drag it out for as long as possible, for literally no reason whatsoever.
From the ages of about 18/19 to about 21/22 I went through a stage of sometimes having what I can only describe as intrusive visions, although they weren’t unpleasant at all. I’d be doing something and suddenly I’d get an actual (maybe mental, I can’t describe it exactly) vision of myself (from two perspectives at the same time, first person and third person) as a blonde Australian girl doing exactly the same thing in an alternate life. One time aged about 18 I was walking through a forest, I started jogging and suddenly my entire vision was taken over by this image of me as a blonde Australian girl running through a forest. It was accompanied by intense feelings that this was me in an alternate life. This other me was a total opposite version of myself, blonde where I’m dark, Australian where I’m British, and most of all she had the most positive, uplifted mood imaginable. (Even before my life became as bad as it is now I had depression and physical health issues and money and living situation problems so my mood wasn’t brilliant). This Australian version of me was absolutely filled with hope and joy and love of life.
I had this experience several more times over the next few years. Aged around 20/21, I was with two friends, one was playing guitar and listening to it through headphones. He took the headphones off and gave them to another friend. As soon as this person put the headphones on I had another intense vision of us both as Australians, in a small private plane, about to take off. He was the pilot and was putting his pilot headphones on. Again I felt that sense of joy and love of life, we were clearly having great lives in this alternate reality.
It happened several other times, and after a few years it just stopped happening. I don’t know whether it was a mental illness, a coping mechanism or what, I mean my life wasn’t as bad then as it is now but it doesn’t happen any more. It really felt like there was this parallel life out there somewhere, where I was the opposite of myself, living the opposite life where everything was brilliant. Sometimes I’ve wondered, if that version of me is actually real somewhere then maybe to balance the scales and pay for that great life I also have to live this life where everything is terrible and miserable and hopeless. Or maybe it’s some cosmic learning experience, experiencing the best and the worst of life. Maybe it was just a coping mechanism to feel good for a few moments but then why don’t I get it any more? I wish I could swap places and be that Australian.
The pharmacist heard my accent and switched to English. I have never been this owned.
Ouch
Is anyone else annoyed by religious people, specifically christians, who assume you don’t believe because you resent that “God” put you in a wheelchair or gave you which ever disability you may have? No muthafucker I just don’t accept you’re inconsistent explanations for what happens to non-believers who never had a chance to “be saved”! I don’t want to get all r/atheist on y’all so stop me if I do
well to be honest, while i do not believe in god for a variety of reasons, i wouldn’t worship a god who cursed random people to suffer regardless of if he was real. fuck that guy.
I said don’t tempt me Sheitan lol. But seriously I’m not religious either but if I was I still would not believe that interpretation of disability and I blame protestants for perpetrating search wretched beliefs. Protestantism really fucked Westerners up!
I’m pretty sure they do this kind of thing (along with because you want sin/you hate god/the church hurt you and I’m sure a million others) because they don’t want to hear or think about your actual reasons. If you have an issue to point out with believing/worshiping they can’t answer, they are happy to just glue another reason on you as being the real reason you don’t believe. I’ve had many theists do this to me, its very lazy and transparent for anyone not already invested in their position. A deflection for the in group. Oh pay no attention to them, they’re just mad at god! Why would we listen to someone who’s mad at god?
Tiny human on public transport: :D
Tiny human having a meltdown on public transport: D:
How is the tiny human still melting down. I want to help you little human but your mom can’t get you to say what’s wrong.
I think I am going to stop engaging with medical treatment, apart from taking my thyroxine. It doesn’t help at all and just makes me worse. I’ve been wondering why I’ve been feeling so tired lately and falling asleep in the afternoons again, then i remembered the dumb endo lowered my thyroxine dose. She even threatened to lower it further at my next appointment. She gaslights me that this low dose isn’t really making me tired. I’ve had enough of this shit. I mean, there is no good dose, the higher dose gives me awful side effects and so does the lower dose, this will never end, but I can’t stand being this tired any more. From now on will take whatever dose of thyroxine I want and my migraine tablets and nothing else. If these new migraine tablets the neuro gives me don’t work or have side effects and she refuses to prescribe me my acute ones then I will buy the accute ones online, even if I have to make a mutual aid post about it. Luckily I have stockpiled quite a few already from my previous prescriptions though. I am cancelling my next endo appointment, I’ve cancelled my upcoming two foot surgeries.
No more. No more appointments or drugs. The doctors and the meds don’t help, the meds riddle me with side effects and the doctors gaslight me endlessly. I really just want to go to dignitas but I need to find the travel money and I don’t have the energy to organise all this. But I really feel like I’m done with all this medical shit. I’ll do the bare minimum to keep myself alive for now and absolutely no more. All appointments are being cancelled. I really only stuck most of them out this long to help with my benefit appeal, and if all the medical shit I’ve had done to me so far isn’t enough to win it, then nothing will be. I have to provide an updated letter of medical support for my appeal and all the medical crap I’ve had so far will just have to be enough. Just too exhausted to continue with this nonsense.
This is too heavy for me. I wish I could help you. All I can say is that i think you’ve done well these last past few weeks in advocating for yourself and I think you should at least keep that up. You matter for as long as you are here.
Thanks. You know what’s even more enraging? Not long ago a person on mutual aid helped me to become a member of dignitas. To become a member, you need to print out and fill in the “Declaration of Membership” form. I don’t have a printer, so I tried to print it at the local library. I was unable to, because the library has blocked dignitas’ website and won’t allow people to access it on the library computer! It’s yet another aspect of poverty - if you’re rich you probably have your own printer and can access whatever websites you want. The poorer you are the fewer choices you have in life. And what business is it of the library anyway if someone wants to go to dignitas - who made them the moral arbiter of assisted suicide prevention?
In the end I found a way around it, by writing the declaration of membership out myself. I was reminded of this today because I need to print some stuff out for my benefit appeal but don’t have the money to do it as no-one has responded to the latest mutual aid post. Even when it comes to trying to access benefits - money needed to live - I can’t do all I need to do because of lack of money. This world is fvcked up and evil. Some demiurge created this shithole to have a laugh at our expense.
I wouldn’t put it past the government to have made a blanket list of banned subjects for public institutions, which would include assisted dying. That sort of micromanagement seems very in line with the British government
I cant advise you on dignitas. But with regards to everything else, you’ve been resourceful with white lies, small deceptions and asking people directly before. I’m sure you can find someone to lean on to get a print or two. Maybe just asking the librarian directly? Surely they know the system is fucked too.
Well, until I can pay for a doctor’s letter anyway, the printing won’t be happening.
I can’t begin to understand the frustration and exhaustion you’re feeling, love. Just…
I love you
Thank you. The friends I’ve made here are literally my only comfort in life right now. I really think I’m going to actually apply to dignitas and see if they will help me. If they were being truthful when I spoke to them before about being willing to do it for free, then I maybe could get the money for travel costs. But then again I’m still struggling to get the cash to get a doctor’s note and do some printing for my benefit appeal. I have to continue with that for now in case dignitas doesn’t work out.
It might sound OTT but it feels like discrimination that I can’t access this service in the UK. People would be outraged if people weren’t allowed to do what they want with their own bodies when it comes to abortion, gender reassignment etc but I am not allowed to do what I want with my own body.
Know that you’re loved and supported, comrade. You’ve been through so much.
Thank you.
I try so hard to be understood and it just doesn’t work out :cri: like I know NTs get misunderstood too, idk. Its very frustrating running over and over what I’m going to say, what I’m hoping they’ll say, and they just immediately misunderstand and I walk away with them not getting it at all. At least this latest thing was not terribly important but its frustrating regardless.
I’m sorry to hear you’re struggling so much with being understood. If you want a hug, here is one
If I may ask, and only if you’re comfortable with talking about it, what do you think makes being understood so difficult in a conversation? Like, what do you feel is missing?
Thank you
I’m not really sure what I can do better. Sometimes people just interpret what I say like, completely differently from how I anticipated. Or people will latch on to one part of what I’m saying too much when it wasn’t meant to be the whole meaning. Sometimes I also just, don’t know how to explain something. idk, maybe this is a 'tism thing, maybe I’m only misunderstood a typical amount.
Anytime
Do you have an example?
Mood. I’m right there with you lately. Feels like walking on eggshells.
It should always be around 15 c around me at all times. Its too hot.
I forgot to pack a lunch and im trapped at campus because of a weather warning. This is entirely my fault and I’m still mad.
Too scared to call therapist
Still too scared to call the therapist. I don’t know if it’s going to be a consultation or if I’m just scheduling the consultation. I want to just go in person but I don’t know if it’s an option.
I’m too scared to pick up the phone. I’ll just never make calls again. I feel like an idiot. Like I can’t make myself do this, I keep trying and sitting on the website and staring at it. I would rather dissociate and daydream for 10 hours than make this call.
I do not think I can make myself do it. Which means I’ll never make autistic friends or queer friends. Fuck. Like I’m completely fucked. I’m fucked.
Like in my brain it would be easier if something happened to me, and then it’s out of my hands. People would care about me because the situation demands it. It’s not me chipping away, wearing people down with inane questions for months because people said “ask questions” and “be persistent”. The war of attrition that is neurotypical socialization is a fucking travesty.
I can’t do it. I’d literally rather cry and scream and break things. I wish I could spontaneously combust. That would feel better than this. I can’t make the phone call and will get worse until I do and I’m selfish for hoping anyone has anything uplifting to say, if previous attempts to open up are anything to go off of
Idk what to do anymore. I can’t make myself do this. I can’t. I don’t know how. I’m too scared. Like I’m gonna throw my phone out the window or something or like scream idk. I can’t.
The office is closed for the day. Guess I’ll do drugs and watch porn or something until it’s time to be too scared to call tomorrow. Like I’m gonna fucking die holy fucking shit
Is it possible to send an email instead and explain that you have phone anxiety? I’m really sorry you’re going through this :/ It’s not as urgent but I’ve been procrastinating calling my dentist for half a year now due to anxiety. It’s weird how something that is so easy on paper can be so difficult in reality.
My therapist says I have to take a mental health day on Friday. The nerve of that woman…
But yeah I’m on the verge of mental collapse so it’s probably for the better. Thinking about just marathoning Mad Max or something.
The nerve of that woman…
She’s right tho. Please do take the mental health day, you need it, love
Yes, ma’am!
As a white atheist who can handle stairs is it my place to point out that the prayer room only being accessible by stairs is odd. I wouldn’t care except the priest is handicap accessible.
Also its weird that basically every public institution in this country has a staff priest.
I would prefer it if everywhere had a staff Druid.
It would definitely be more fun for starters
I could never support state funding of perversion (British culture) like that
There are druid orders all over the world.
Shush you, druids are great and not necessarily British
I will accept the proposal on the condition that any state funded druid swear an oath of anti terfdom
I think anything state funded needs to swear that oath (and also everything not-state funded)
Might have a herniated disc and can’t move without pain. I’ll be on the floor if you need me.
Oh no love
Shit! Can you call an ambulance?
No, it’s one of those things where I’m pretty much just stuck lying down for 4-5 days on otc anti-inflammatory meds. It’s happened before, they think two lower discs are impacted/pinched together and every now and again it flares up. Also, I can’t afford a doctor right now, unfortunately, so I’m just doing what I’ve been recommended before. An ambulance costs between $2-5k, and the shitty insurance I have wouldn’t cover all the x-rays or the doc visit, it’d probably be another $3k to get checked out. I’m doing better today though! I can stand upright and even move around a bit so I’m hopeful that resting will be enough for now.
Hey, sorry I disappeared a bit. I’d ask how it’s goin, but it doesn’t look like the answer is “fantabulous.” Shit’s fucked, I’m sorry folks.
Either way, happy to welcome you back! And while it isn’t going fantabulous, we all still are
I think I may have ADHD but talking about it with therapist hasn’t been much help. Rehash of focus harder , do more exercise, check your diet . paying attention and not stimming for even a minute is hard even with those changes.
your therapist sucks and is trying to gaslight you out of having symptoms. would highly recommend getting a new therapist who specializes in that sort of thing, bc constant invalidation from an authority figure isn’t good for you!!
Frustrating since other mh professionals recommend the same things
yea… a lot of therapists are trained in cbt, which operates under the assumption your problems aren’t real problems. so if your problems ARE real problems, they end up just gaslighting/invalidating you. it sucks! but it’s a product of capitalism just wanting everyone to be a good worker drone, so idk what i expected
“just do precisely what your condition makes impossible. that’ll be $200”