If you carry one thing with you today, let it be this: you are beautiful, you matter, and you are loved.
As always, we ask that in order to participate in the weekly megathread, one self-identifies as some form of disabled, which is broadly defined in the community sidebar:
“Disability” is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.
Mask up, love one another, and stay alive for one more week.
Updating the shift app exactly one minute after they open up new shifts to see them all taken. Summer “break” my butt, I need moneeeeey
My medication is expensiiiiiive.
You could open a sandwich stand instead and sell your sandwiches if no shifts open up again.
Brilliant. I made four sandwiches for art/hanging out at the park time.
Boiled potato, radishes, chives, red onions, chickpea mayo, salt and pepper on rye. Two also get capers.
So I found out I’m not Autistic and it was a misdiagnosis for childhood trauma. I feel a little vindicated for that time I went to ABA training and the trainers would ask me why I was even there. But it also sounds like I have a much bigger mental hurdles to jump over.
I am happy to hear that you learned something so important about yourself. Like un_mask_me said, I hope your healing journey will be more accessible to you now that you know. That feeling of vindication must be bitter sweet.
Take care, friend, I believe in you
It’s interesting how trauma and a lot of disorder symptoms can overlap and manifest in similar ways. Hopefully the clarity around it can help with that part of your healing journey going forward.
I made a post here months ago about how I saw a book I owned being sold on ebay for over £100, so I tried to find my copy to sell, with no luck. It’s just happened again. I saw a book I’ve had since childhood going on ebay for £115, so I tried to find my copy, and I swear I remember seeing it on my bookshelf last year but now it’s gone. I did have my stuff moved out of my room temporarily last year as a builder came to fix a damp mouldy wall. Maybe it got lost somewhere while being moved. Why does this keep happening? And how? Two builders carried the bookshelf, with all the books in it, up to the attic and then back down when the repair was complete. It’s not up there and I watched them do it, nothing fell off. Things must just dematerialise into another dimension.
I am absolutely certain this is also the dimension the socks from the washing machine disappear to.
Joking aside, I sympathize with your frustration. The books can’t be gone, not really at any rate, and I’m sure they turn up eventually. Probably when you least expect it.
My surgical wound is infected now. Every day brings a new joy. I was hoping to avoid making more mutual aid posts until the end of the month but now I’ve got no choice, I need to get iodine items to treat this. And my next surgery is on Tuesday so the next lot will probably get infected too. So tired.
So sorry that it’s infected, was really hoping you could catch a break. Hopefully it will heal quickly and you can catch up on sleep.
Thanks. I’m kind of resigned to it now, I thought it would probably happen again. I just can’t fight germs off naturally.
I love all my immunocompromised comrades <3
why is disability pride month in the hottest month ever cant it be in like fall or something
Maybe it’s also in summer so you “can’t hide” physical disabilities as easily under a big jacket or something. I hope it’s an innocent reason, but it probably isn’t
Maybe they think it must be in dry weather or we will all slip over as we are unsteady on our feet or something.
addendum
I wish people would stop popping off live rounds with the fireworks
I hate this behaviour! Hope they pipe down soon. Maybe some earplugs would help?
It stopped around 3am, thankfully. Weirdly enough I struggle to wear ear plugs because my ear canals are incredibly tiny, not even surgery could widen one of them. I do use a noise maker app that helps a lot!
What’s a noise maker? Like white noise or something?
Yep, I have this app (on android) called White Noise Lite that I’ve used for years that lets me combine different noises like rain/white noise spectrums (pink, blue, green, etc.) that also has timers and alarm settings built in. It really helps block out stuff like traffic and hvac, which can drive me mad some times.
Do you listen through earphones?
Nope, I just crank the volume up on my phone speaker and keep it nearby. Sometimes I’ll snuggle it under part of my pillow so it’s as close to my ears as possible.
I’ve never heard an actual gunshot in my life, but I can totally imagine how terrifying it must be. Hope you got through the night alright
Guns are part of the ‘culture’ where I’m at, and you learn to pick out the differences. The scary part is knowing the idiots firing off during the holiday are wasted and/or high. Made it through okay, but I am tired this morning. Really hoping there isn’t more of it tonight.
I’m keeping my fingers crossed for you.
And of course people play with guns especially when they’re on something. Inhibitions lowered and stuff like that. Urgh, hate it.
I’m glad nothing happened to you and I hope you can get some rest now or later today.
Thanks :)
Just helped sneak Chinese tourists into a restricted area for a better view. 🤫
I am not quite sure where to post this, so I’d prefer to share it with you lovelies. The healing journey is on a good way and while I’ve had setbacks, it’s still going well. However
I got a mail two days back that my storage compartment (for quite literally everything that I own, since I don’t have my own apartment atm) “possibly took some water damage”. As it turned when I went to check, the only thing that didn’t get damaged was my box of memorabilia and books, some of them aren’t even available for purchase anymore. While that was a huge load of my shoulders, my entire bed, including the mattresses, is a huge fucking sponge. A couple of other things got damaged too, which leaves me with having saved a box of books and mementos, two boxes of dishes and kitchen stuff, a chair and a cheap footrest. I don’t own much beyond that, and it’s never really bothered me, but I would’ve preferred to keep the bed. It was really nice.
I filed a damage claim offered by the company who rents out these compartments and if all goes well, I should get compensation for the entirety of the broken stuff. But, you know, paying nearly a 100 bucks a month for 2 years to store something securely, I’m pissed that it wasn’t secure. Not gonna get that money back, and it wasn’t even enough to get all my stuff back.
Worst part is that I just feel numb about it. I nearly lost my most precious books and mementoes, and my only reaction was to write the damage claim.
Update: The damage claim is being processed, I received multiple profuse apology mails from the owner of the storage unit and they’ll refund this month’s and last month’s rent. It’s not perfect, but it’s better than not getting anything it all.
Ohhh love, I’m so sorry you’re going through this . I’m really glad your special books and memories were saved, but it’s so unfair you lost so much.
Sending you all my love and hoping the claim goes smoothly. Please take care of yourself 💜
Thank you Onandrah
jesus that sucks, im so sorry that happened
Thank you
$2400 might still be small claims court, idk if it’s ever possible to get a company like that for breach of contract or false advertising or the like
I don’t know either. What I am going to do is ask for the money for the stuff that got damaged and for an immediate cancellation of the contract. This isn’t gonna be great, but that’s the stuff that I can get back, even according to their user agreement. If they refuse, I might just go ahead and figure out what I could get them on.
Glad to hear you’re healing. Sorry to hear about all your property getting damaged. It’s outrageous that they won’t also refund you for the years of storage. Maybe a no-win no-fee lawyer or blast them on social media until they reimburse you fully? If you share the name of the company maybe we can start an email campaign to get them to refund you properly.
I’ll see what I can figure out, but I thank you for the suggestions. I don’t have any social media anymore, so I guess the lawyer would have to be it. But maybe I can get around the lawyer and figure out another way. I’ll see once they reply.
Thank you love
You could leave them a detailed negative review on trustpilot. I had an unsatisfactory experience with an optician once, left them a neg on trustpilot and the optician saw it and refunded me. Or we could all bombard them with emails. Hope you get it sorted one way or another.
That is a good idea full of deviousness and subterfuge
I might just do the trustpilot thing, thanks!Make sure it’s polite and factual but very detailed about all the things they did wrong (letting your stuff get damaged, refusing to refund for the years of storage and anything else you can think of.) No angry ranting. Include the total amount they owe you including the years of storage. Include dates for authenticity. Sound sensible and rational, no raging, just pure facts, they’re more likely to take you seriously.
I will, I got some practice writing these types of complaints, so I’m actually kinda looking forward to it.
Water damage is awful, I’m sorry you ended up losing a bunch of stuff because of it. Hopefully the process goes smoothly with the claim and you can replace what you need quickly without issue. I think it’s normal to feel a little numb when dealing with stressful stuff like that, on top of everything else. Hope you’re not too hard on yourself for it.
Thank you love
I hope I get the money back too and everything will turn out fine. As to being hard on myself, I don’t think I am. If anything, I feel surprised at my apathy for the whole situation. Idk if that makes sense, at least I hope it does.
It does, I definitely get the muted feeling that depression can cause. I guess I was trying to say that even if the reaction wasn’t as strong as you expected, it’s okay. Is it possible after so much time had passed some of the attachment to a lot of the stuff just faded?
It’s alright, thank you again :)
I am very happy about the mementos surviving, yet the stuff that didn’t survive really had no real emotional value. A bed, as personal as it is, is still just a bed. And the other stuff that got damaged is pretty much the same type of utility objects (a coffee machine for instance). I guess what feels so strange about it is that I usually am very energetically emotional about bad things happening, yet with this storage unit, I got scared very briefly, but then I felt almost indifferent.
Ah, that definitely makes sense, especially feeling weird about it. Sometimes talking it out with someone one on one can help, even if it’s just swapping stories over a cuppa. My DMs are always open for my comrades.
People react to trauma at different speeds and in different ways, and you shouldn’t feel bad about not feeling trauma for not losing precious mementos. I hope you get money for a new bed, anything else would be stupid.
Me too. I’m actually slightly versed in trauma from personal experience, so it’s not alien to me. I just know I usually have stronger reactions to traumatizing events and this one feels almost underwhelming. I think it’s the depression adding another layer of apathy to these experiences.
Thank you for listening
Maybe. Maybe the relief of not losing something softened the hit? At any rate I don’t think you should blame yourself for not feeling trauma. I’m always ready to listen.
Thank you love, I appreciate it & you
I should say that part of the sneaking process involves having a talk with the guard about how spoiled and ridiculous billionaires are. Xi, I’m your strongest soldier I guess.
Don’t let me post for the next 3 hours, I’m arting and then I have to do a thing.
Should I take your phone away until you have to do the thing?
Smort. We should consider that next time
Trans Sisters Attacked – Need Urgent Help
Hey friends 💙,We were attacked in our camp just for being trans. Our shelters burned, and some of my sisters were hurt. We covered hospital bills, but now we really need help finding a safe place to stay in Juba.
We’ve raised $102 so far, but still need about $700. Any share or donation means the world to us. Thank you for being here. The mutual aid Link is in my profile.thank you for taking time to read this 💙🙏🏿…
so anxious and overstimmed i feel feverish
my parents got a new puppy and im helping train it and take it out at night and stuff and oh my god i am having such bad executive dysfunction because of that, it’s pretty pathetic my brain sees i have to do something like 4 times a day and absolutely explodes
Sorry to hear that. My landlady has a tiny dog and although I do suffer with executive dysfunction I found the dog actually helped with that. It gave me something to get up and go out for. At least until my ankle injury and foot surgeries put a stop to that. If you get in a routine with the dog you might find that instead of avoiding it, you start to really enjoy it.
I wish I could explain this to people, like my brain makes my body feel physically uncomfortable when this happens and the spoons dry up so fast. At least the pupper is worth the effort and discomfort. Animals are awesome, how old is it?
like 2 months i think
Puppys are adorable, but they’re also a load of work, and that’s already hard on people without executive dysfunction. I feel for you, and I hope you have/find an outlet for the overstimulation.
Is the puppy cute at least to make it a tiny bit easier?
yes, and im his favourite
Perfect
You can’t tell me to touch grass, I’m posting from the park.
neurospice adventures continue
In a vicious cycle getting used to Adderall again. Today I wasn’t able to shower or get dressed, but I sent two job applications (something I have been putting off) and am going to try to get to the store for some actually filling foods.
So much pent up energy and it’s like the walls of my mind palace are all swaying back and forth. My emotions are calm again, though, as much as I’m struggling to physically do things.
The time honored tradition of laying on the floor has been deeply helpful. Today, this is productivity. If I don’t eat, I will always be hungry.
I got the blood tests done today. I googled “hair loss blood tests” and wrote a list of them all. I gave the list to the nurse, well phlebotomist. They actually now have a dedicated phlebotomist at the surgery which is a new development. They’ve just started doing it by computer now. You used to get a paper form for blood tests and the doctor who ordered them would tick each box they wanted you to be tested for. But now they have to click each one on a screen. She hadn’t heard of some of these tests and was having trouble finding them on the screen. I started to worry that maybe google was wrong, maybe these tests aren’t real and I would get caught out.
She asked “Who ordered these?” I said, “The endocrinologist.” She said “I can’t see anything about that on the computer.” I tried to think of an excuse for that and said, “Oh, uh…um…I…it was a follow up phone appointment. They just told me to get these done before my next face to face appointment.” That seemed to make sense to her and she accepted it and eventually managed to find the tests on the computer and did them. I guess the endo will wonder what’s going on and why they’re sending all of these random test results over.
This is the deviousness and subterfuge you have to go through to get medical help in this country.
The drop in services in the past decade is truly shocking. Don’t feel bad about doing what you need to. Don’t let the system discard you and leave you for dead purely out of the idealist perspective that it should simply help if you engage with it politely.
Thank you.
I am so glad that deviousness and subterfuge got you the tests that you need. Now let’s hope the results will help you with the treatment. Keeping my fingers crossed, love.
Thank you!
It almost sounds like they automated as much as they could and never trained/informed the people actually using the new processes?? Maybe that’s giving them too much credit. Like they’re forcing incompetence and negligence through “streamlining”… what the fuck. If the endo questions it, maybe it’d work to just gaslight them like “Your office told me to get these done over a phone call from however many months ago”, or something. It feels gross suggesting it, but at the same time your health should be a priority considering your medical history. I hope you can get some proper treatment soon, love. Whatever works in your favor at this point.
Thanks. I thought if the endo questions it, I would pretend it’s crossed wires. I could say “I asked for these tests to be done and sent to you but I never said you ordered them.” And just act like the GP’s office assumed the endo had ordered them.
